Home | About Us | Latest News | Speakers and Events | Educational Resources | Patient Stories | Contact Us

Patient Stories - Carin (IC/Vulvadynia)

<< back to patient stories

I have been suffering with chronic pelvic pain for approx 15 years. It started with IC symptoms. I went to many doctors and no one could tell me what was wrong. I then developed Vulvadynia symptoms and again I was diagnosed incorrectly with yeast infections although the tests were never positive. I had one Urologist that said I had a narrow Urethra so he inserted a rod with no lidocaine or anesthesia. It was one of the most painful experiences of my life.

Finally after 11 years of being misdiagnosed, I found a physician at the Pelvic Pain Center in Louisville, KY that had some answers. Dr. McQuaddy and Elise Goodman, NP have helped many women in our area. I had also developed symptoms of pelvic floor dysfunction by this time and could barely walk across the floor. I started physical therapy with a wonderful woman in Lexington, KY named Barbara Bowman (and later physical therapy at the Pelvic Pain Center).

I have tried many medications and have found the most relief from Lyrica. Although, it has one really bad side effect- I have gained 30 pounds in the last 2 years since I have been on it. I also have had several Heparin Cocktails over the past few years which has provided some relief from IC symptoms.

I also watch what I eat as I know what causes flare ups. I have ruled out many things from my diet including: tomatoes, soy, vinegar, and most fruits.

Last, I have also been doing acupuncture which has been great. It has truly helped with many of my symptoms. The only drawback is that my insurance does not cover it, so I have to pay out of pocket.

This is my experience. I have had many ups and downs. I will be happy to share my story and experiences with anyone that may benefit from it.

Disclaimer Statement:
All information on the P.U.R.E. H.O.P.E. Web site is provided with the understanding that the P.U.R.E. H.O.P.E. does not engage in the practice of medicine.  The members of P.U.R.E. H.O.P.E. cannot and do not give medical advice.  No information on this Web site should be considered medical advice.  Only your personal physician can do this for you.